Allergies take 3! (and more!!)

Check out KFA's _22 Things We With You Could Understand About Food Allergies__

People asked when I was pregnant, what was the chance of the baby having the same allergies as my toddler. It really was 50/50. 2 weeks in, and we already had the first bit of the answer….3 out of 3 children had CMPA. A dairy allergy. In a space of 6 hours I watched my contented baby turn into a miserable, writhing in pain little girl, producing nappies that were not “normal”.

I was so grateful that I had a supportive Health Visitor, who straight away put  my daughter on to the NHS allergy pathway, with a referral to the dietitian, and we made an instant appointment with the GP.

But one thing we didn’t know was how severe her allergy to cows milk protein was, or whether it would be her only allergy. What we did know was that this meant that weaning was going to have to be the allergy led method again. Following on from dietitian advice, we started with our son’s known “safe” foods, trying to build up a base of foods, before testing some of his allergens.

I’ll never forget the day I went for the first of his known allergens. I was nervous. Knowing that this could cause my daughter pain or worse, was not a great feeling. But I had to do it. We were lucky. The first one we tried was apple, and all was ok! Phew! And we tried that because it is added to so much that it was a bonus if she could have it. Maybe I then thought it wouldn’t be so bad or my mind just thought lets go for it, but I then tried another allergen. This time it was one where my son was allergic to  a whole food “family”. The first time seemed ok, so we went on for attempt 2. That night, we did not get much sleep. She was so unhappy. In pain, drawing her legs up, crying, unsettled. We thought it was the sweet potato, but to be sure, we had to try again a week or so later. And yes, it happened again. One little girl, very unhappy. And so her allergen list started.

What we have found is that when she has gut based reactions, they are generally more severe than her brother’s. For example, she can’t tolerate even medical grade coconut products, but her brother can. She can’t tolerate any fish we have tried, her brother can tolerate white fish but not oily fish. She can’t even cope with peppercorns or ground pepper from the nightshade family, he can cope with a little.

But we’ve also got a little girl that doesn’t like to have lumps in her food. After 3 months of introducing food, she will finally have a bit of texture, but this has been an additional challenge. The dietitian recommended focusing on textures over new foods, as this was more important, so the introduction of new foods has gone on hold. We’ve got many more things to try.

So it’s actually been trickier this time round. We don’t have all the answers for our daughter yet and we don’t know if it will be worse than our son or better. But we know it’s currently a very similar path. If we go away, even for 1 night, we take 2 bottles of antihistamines, 2 inhalers, snacks and milk for both children, probiotics to help their guts. The list goes on. Currently there is no epi pen in the kit, but that doesn’t mean their won’t ever be. I’m just grateful that neither has had a reaction that needs one.

So, life as an allergy mum continues. And the one thing I am grateful for is the fact that if nothing else I can be a support to others who are journey some of a similar path.

Check out KFA's _22 Things We With You Could Understand About Food Allergies__ (1)

Realising some people don’t have a clue!

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One of the things I have had to do in recent weeks and months is learn that it is ok to put up barriers and set boundaries. This is actually healthy. I’m also learning how much I need to value and respect myself and my time. This has meant I also now know that my friends should be respecting and valuing me in the same way, and they should be placing a level of value on my time.

Sadly I have also realised that some people don’t do this. I know that all people are fallible. I know that we all make mistakes. I’m certainly not saying that I don’t make mistakes or upset people. But I have realised that trust and respect come hand in hand, and both have to be earned and maintained. Once it is tossed away, the damage can be irreparable.

My priorities have to be my faith, my family and myself. My self care includes making sure I surround myself with those who are building me up and not knocking me down. This doesn’t mean only surrounding myself with people in positive happy moods – in fact, I have been able to be a support to others while working through things for myself. And knowing I can be, really does help. But what it does mean is making sure that those who are in my life add value in one way or another.

For example, I have an amazing network of support that I have talked about before, thanks to a group of mums I met online who all gave birth at the same time as me. They are there pretty much 24/7. They know me so well and can build me up on my down days, celebrate with me on the good days, and make me laugh most days! The time I invest in them is so valuable to me and I know they are there.

But I have also learnt that some physical friendships are more one sided. I have learnt that my expectations of people and their commitment to time and relationship building can be different to the other person. And because of the loyal person I am, I have ignored this, but I didn’t realise the damage that this was doing. So I am now trying to be selfish in someways and say this isn’t healthy for me.

People say “talk it through with them” or “they may not know what they are doing”, and I totally understand that this is often true, but  the place I am in at the moment means I don’t have the energy for the confrontation or the emotional space for it.

I know this post could be seen as “controversial” or stirring the pot, but as ever my blog is honest and where I am at. I won’t be answering people who ask “Is it me?” in response to this, as actually that will show how little they have taken in.

Life is a cycle of seasons. And friendships can move in those seasons, and that is 100% ok.

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