Allergy fun…..when all the best plans…

This weekend we had the total privilege of witnessing the marriage of one of my longest standing friends. It was an amazing weekend, but that kind of event for us always comes with a few stresses.

Our friends were amazing in their catering planning for the weekend, providing lots of food for me to eat with my allergies, and lots for my eldest son too. We had agreed in advance we would provide the food for the toddler, as we know it is hard to cater for all his allergies.

So with all the best laid plans, there also comes for me a level of anxiety as to the what-ifs that can happen. And we survived the first 24 hours without a hiccup. But with 21 other people around, who are aware to a point, there is always going to be a degree of risk. With a mobile toddler though, you at times need eyes in the back of your head!

We don’t know what, or when, our little guy picked up something he shouldn’t  have, but somehow he ate something he was severely allergic to. An unhappy, itchy baby was bad enough, but the sickness that followed was on another level. I was so grateful for the help of new, but wonderful friends, who jumped up to help so we could sort out a very unhappy little boy.  As ever what amazed me was once his system had rid itself of the allergen, and he was cleaned up, out little boy was back to his happy, chatty self! He tucked in to more, safe, food, and merrily chatted away to people.

We will never know what he ate, if it was a known allergen, or a new one, and that makes it tricky, but what I am learning is that we can only do so much. There will always be a time when there can be errors and slip ups. We try to minimise the risk as much as we can, but we also want our little boy to enjoy life and have as many similar experiences as other children as he can. But we will also spend time raising awareness with others about the dangers of allergies.

No, he currently doesn’t have an epi pen – as currently all his known allergies are non-IGE. But that doesn’t mean one day his allergies won’t become IGE and result in anaphylaxis. It also doesn’t mean that even a small bit is ok. Too many times we have heard people say, “well a small bit can’t hurt can it?” The answer is yes, a small bit can do a huge amount of damage to his gut. As an example, testing mackerel – just a teaspoon of it – resulted in 4 weeks of his tummy being unable to hold any food!

Things are not going to be easy for a potentially long while. I will permanently be grateful to our child minder, who provides him with a safe environment which he adores. To friends who help us have safe play experiences. People who will have him to stay and even provide him with food, which is not always the cheapest or most straight forward option.

Living with allergies and living with a child with allergies isn’t easy, but it is what it is. What I am learning on this journey, is that I need to stop letting people make me feel like it is an inconvenience,but it is ok to be honest and say it is a problem.

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Small steps

Life is made up of small pleasures. Happiness is made up of those tiny successes. The big ones come too infrequently. And if you don’t collect all these tiny successes, the big ones don’t really mean anything.

This is so true in where I am at in my parenting journey at the moment. With both of my boys.
With my eldest we are celebrating the small successes being made as we approach GCSEs, and ticking off little milestones as we work towards the big milestone. I say we, because this really is a family effort. He might do the studying and the writing of the exams, but we are doing this together. Our plans are structured to support him and encourage him through each stage.
At the end of this stage we will be moving on to the next big stage. Some big steps have happened…..college interview, course place offer….and acceptance, mock exams done, big coursework assessments done. All steps that need to be completed, and all that need to be embraced and celebrated in different ways.
With my youngest we’ve been celebrating some of the small successes that are helping him to achieve the normal milestones, that all parents celebrate. After finally getting a physio assessment, we’ve got shoes. Earlier than normally recommended, and against everything I’d been told, but essential in the first steps to help sort his feet and legs. Currently his feet – mainly one but the other is also a problem – turn inwards and under. This has affected his ability to walk. His mind was very definitely willing, but his body didn’t follow.
In the 5 days since having his new boots, his confidence in balance, standing, and walking with a walker or furniture or our fingers has leaped ahead. The look of determination on his face as he takes each step is amazing to see. The smiles and laughs as he reaches his destination quicker each time are fabulous to capture. I want to shout and scream with excitement and let everyone know about each small step, as it is such an achievement. I know some of this is normal for any parent, and so I hold back too.
What I am remembering is that at any age achievements need to be celebrated for each child. Each child is unique and they will achieve at the age and pace that is right for them. Yes there are times that help is needed because something isn’t working properly etc, but that is also ok and good. I am a proud mum, and I’m not sorry for that. I am my boys biggest champion in the world, and I always will be.
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