Allergy fun…..when all the best plans…

This weekend we had the total privilege of witnessing the marriage of one of my longest standing friends. It was an amazing weekend, but that kind of event for us always comes with a few stresses.

Our friends were amazing in their catering planning for the weekend, providing lots of food for me to eat with my allergies, and lots for my eldest son too. We had agreed in advance we would provide the food for the toddler, as we know it is hard to cater for all his allergies.

So with all the best laid plans, there also comes for me a level of anxiety as to the what-ifs that can happen. And we survived the first 24 hours without a hiccup. But with 21 other people around, who are aware to a point, there is always going to be a degree of risk. With a mobile toddler though, you at times need eyes in the back of your head!

We don’t know what, or when, our little guy picked up something he shouldn’t  have, but somehow he ate something he was severely allergic to. An unhappy, itchy baby was bad enough, but the sickness that followed was on another level. I was so grateful for the help of new, but wonderful friends, who jumped up to help so we could sort out a very unhappy little boy.  As ever what amazed me was once his system had rid itself of the allergen, and he was cleaned up, out little boy was back to his happy, chatty self! He tucked in to more, safe, food, and merrily chatted away to people.

We will never know what he ate, if it was a known allergen, or a new one, and that makes it tricky, but what I am learning is that we can only do so much. There will always be a time when there can be errors and slip ups. We try to minimise the risk as much as we can, but we also want our little boy to enjoy life and have as many similar experiences as other children as he can. But we will also spend time raising awareness with others about the dangers of allergies.

No, he currently doesn’t have an epi pen – as currently all his known allergies are non-IGE. But that doesn’t mean one day his allergies won’t become IGE and result in anaphylaxis. It also doesn’t mean that even a small bit is ok. Too many times we have heard people say, “well a small bit can’t hurt can it?” The answer is yes, a small bit can do a huge amount of damage to his gut. As an example, testing mackerel – just a teaspoon of it – resulted in 4 weeks of his tummy being unable to hold any food!

Things are not going to be easy for a potentially long while. I will permanently be grateful to our child minder, who provides him with a safe environment which he adores. To friends who help us have safe play experiences. People who will have him to stay and even provide him with food, which is not always the cheapest or most straight forward option.

Living with allergies and living with a child with allergies isn’t easy, but it is what it is. What I am learning on this journey, is that I need to stop letting people make me feel like it is an inconvenience,but it is ok to be honest and say it is a problem.

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When you just want to make it all better

Some of the toughest days as a parent are the ones when you can’t take away the pain that is making your child hurt. Whatever age, your gut instinct is to protect them and to stop pain.

For nearly 3 weeks we’ve had to deal with the aftermath of the worst allergic reaction with our toddler since they realised he couldn’t have cow’s milk. The biggest problem this time has been that it totally unbalanced his gut. So we’ve had a very unhappy little boy. All because of a few mouthfuls of a new food item – mackerel!!

It has been so hard. You can’t explain easily to a 16 month old that they are going to feel sore. You can only hold them, and at times feel pretty useless that you can do no more than provide cuddles. Encouraging him to eat, when he knows food is linked to some of the pain he’s going through, is tough. But knowing that he needs to eat to have the energy to get better makes it harder. You do all the right things – staple foods, probiotics, water, cuddles, sleep – but it doesn’t make it instantly better.

And then you have the debate and juggle, do we leave him and go to work as normal, or do we stay at home. I know we are blessed with a fabulous childminder who provides him with the most loving environment, and my in-laws who adore him too. But it doesn’t make the choice easier or stop you, as a parent, worrying when he’s not with you.

For me it is one of the juggles I will always struggle with. In fact I struggle with it with both of my boys.  Do I send the older one to school or not? It’s always a balancing act. I don’t think it gets easier in some ways as it is different decisions with different impacts, but you still always want to get it right and to keep you child free from harm.

So there will be days when I can’t take the pain away, but as I mum I will always provide the cuddles.

Finding time for me

I’ve just spent a wonderful week with my husband and toddler in Dorset, but I’ve come home exhausted! I have felt like I need a other break to recover from this holiday, which seems so ungrateful. I realised 15 minutes after walking back through our front door what had gone wrong…. in 7 days away I hadn’t had 15 minutes totally to myself.

I have spent the week making sure my husband and son were happy. I planned in spending time with dear friends, who we don’t get to see very often, and I wouldn’t take back a second of that time. The week was a good break, and I don’t want to come across as ungrateful. But it has made me reflect on where I find time for me and how I find time to recharge my batteries. It has also made me realise I need to find a way to tell those closest to me that I need time and space to myself without them feeling rejected or unloved. If I don’t then I become grumpy, short tempered, agitated, and then I want to retreat further and further in to myself.

At home, I work for a fabulous organisation, I spend 16+ hours a week working at home in my own space. Yes I have video calls etc with colleagues, but I also get head space while I am working. (I know that might sound like a contradiction, having my own head space while working, but I get time where I am not having to engage directly with others and although I am generating outputs (often lots of outputs!!) I am also no having to energise others. I can only liken this to a rechargable battery. When in a torch, for example, when it is turned on it is being drained of power. When it is off, it is static-not draining but not recharging. When the battery is placed back on the charger it is gaining power again so that it can make the torch shine brighter and for longer.

A few years ago realising I was an outgoing introvert was a big turning point, and since then I have kept trying to carve out space for me. Be it half an hour in bed on my own each evening with a book, or making the most of the nap times in the day since having a baby. Taking that time for me has become crucial. I had forgotten how when on holiday routine changes, and there are others with expectations. I also had expectations, and we’d never discussed them.

I know before we go away for much longer in the summer we need to have the conversations about how each of our needs are met. I know I am more complicated at times to read, but since having a baby and now a toddler, I know I need to carve out that space for me even more than ever. Parenting is still very much a journey, possibly even more so the second time round! But this time I think I am learning more and more about myself!

Parenting guilt

One thing I’ve realised the second time around is the amount of guilt I carry as a parent. It isn’t across 1 specific area, in fact it’s across all areas and with both boys!! I feel guilty that I need to work. Not for the money so much, but for me, for my sanity! I then feel guilty that I am enjoying my work and my time away from being mum. I even don’t have a problem with doing extra hours, until I feel guilty that I’m not at home being mum.

I feel guilty that my husband has been so amazing at getting up in the night, as we have discovered that not getting enough sleep is causing me to have more migraines. I feel guilty if I go out in the evening and then the baby decides that is the evening to not sleep, so my husband gets no peace.

But I also feel guilty when I am at home spending time with the baby. I feel bad because all it seems I am doing is playing. I’m having fun…..exhausting fun, but fun. I feel guilty that the baby takes the attention away from the teenager, and guilty that the teenager takes the attention away from the baby.

I know, as I’ve said before, that I am an anxious parent. I know because of this I constantly seek affirmation and reassurance that I’m doing the right thing. I am the kind of person that thinks if I have inadvertently offended someone they will hold on to it and hold it against me for weeks. Or if i’ve forgotten something it will be catastrophic and I won’t be able to move on. I know all this about myself and know it affects my guilt too.

I think I also know there is no perfect work life balance. I will spending life knowing i’m not always getting it right. I just need to learn to accept that I am a normal person, who will make mistakes.  My boys love me, I know that. I just have to relax and accept that I can only be the best I can be, and that that is enough

“There will be so many times you feel like you’ve failed.  But in the eyes, heart, and mind of your child you are a super mom.” ~Stephanie Precourt, Listen to your Mother