Realising what is causing damage

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One of the things that I have started to realise over the last few weeks, is that there are certain things that trigger emotions and reactions within me that I don’t expect. I have realised that some people live in their own bubbles and miss what is going on in other peoples’ lives. Sometimes this is intentional, and sometimes this is completely unintentional. And this really sucks.

It makes me put up barriers in relationships as I take personally things that were never intended to be personal. That were written without any thought of me. And that is ok. That’s how it should be. But I need to find a way to cope with this and to accept that these are not aimed at me.

This has also made me more aware of what I share and how it can be perceived by others. It’s about remembering not everyone has the perfect relationship, had the perfect childhood, has the best relationship with their parents. Not everyone gets their happy ever after. Some people have to kiss a lot of frogs. Some people are having to discover who they are. I am still having to discover who I am.

At the moment the only way I can cope with this is to put barriers up and shut myself away. Cut myself off while I re-evaluate where I am at, and give myself time to recover. And I know that this then confuses people. It isn’t easy to explain to anyone, it’s just how it is at the moment. I don’t always understand it myself. I just know when it happens that I cope the best way I can at the moment.

This week I have had to deal with a middle of the night panic attack for the first time ever. It was scary. I don’t know what caused it and I didn’t know how to manage it, but I managed to get myself back under control after a couple of hours. The only way I have been able to cope since is to stay where I feel safe – my home. I have seen a couple of people, but in my space. I know I will have to face the fear of going out again soon, but that battle is for another day. The anxieties running through my head some days are crazy! They are often irrational. They are almost always unfounded.

I can’t explain the ins and outs of PND for everyone, or say how each individual will be affected. All I can say is what affects me. For me anxiety and obsessive and controlling behaviour are 2 of my big “symptoms” of the post natal depression. I don’t understand why, and i really don’t understand the nuances of it at times – why the position of a knife in the kitchen drawer will drive me crazy, but i’m ok putting away a sock without a pair for example. It’s illogical, and I know it is illogical, but it is how my body is and I am having to learn to manage it.

Writing this blog helps me express where I am at. At times I struggle to vocalise it, even to my amazing husband. But I can write it down. My only hope is that my musings and downloading of how I’m feeling helps someone else out there.

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A fine line….

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I’m discovering how there is a really fine line between me feeling up and me feeling down. I often don’t know when I am close to teetering over the line. I am starting to recognise the triggers though. As I posted a few days ago, I have had a really positive few days. But I also knew that this didn’t mean I was permanently back on the up.

This afternoon I have felt myself sliding back down. Parenting three children (and yes my teenager is still my child) is a juggling act. As I have said before, all 3 have different needs and demands on my time. This week I have been having to manage a toddler who has had an allergic reaction to another food. As a result, he has been crabby, clingy and just not himself. Juggling that with a 6 month old who is trying to reach further, move more, do more, but constantly toppling, and also needing greater input and awake for longer, has been exhausting. The break in the madness was then going out for half an hour to pick up the teenager! But all of this, combined with an early start, and a full on, but highly enjoyable day before, has dragged me back down.

I am still having to learn where to draw a line and give myself a break. When I topple over the line, I find myself getting into bad, negative cycles. I start to compare myself, my life, my children with those of others. I compare with friends, with relatives, with strangers who post in random places on social media. I get myself down because I feel I am failing my child(ren) because they are not achieving their maximum potential.

I struggle because my baby isn’t keen on eating, when my friend’s child who is younger will chomp through 3 meals. I struggle because my toddler isn’t as eloquent as other children his age. I struggle because I can’t do with my children everything I feel I should. I struggle because I don’t want to leave the safety of my house. I want to stay in my safety blanket. I know I need to find space to stop and take a break when this happens, but it is finding the safest way to do that.

I know I made a mistake when I got to a similar point when my toddler was younger. I cut myself off from people completely, and nearly lost completely some very valuable friendships. This time I am trying to get the balance right. To be able to take a step back without cutting everything off. I’m still not always getting it right, but I am trying, and I am learning.

I hate the struggles that PND gives me. I hate the impact it has on my life at the flick of a switch. But I am learning that I there is a trigger, and I am trying to stop the switch being flicked.

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6 months in and I’m starting to feel a bit more normal!

Newcastle Family Life_ What it was like suffering from PND

This week saw the 6 month mark since I gave birth. In the last month we’ve started to have some big changes…..she’s moved out of our bedroom,she’s starting trying food, she’s sitting up unaided. But for me the biggest change has been one that I’ve felt in me. In the last couple of weeks it’s started to feel like the horrid fog that is brought down by the postnatal depression is lifting a bit.

I’ve actually started to feel real joy in things again, rather than the forced feelings that weren’t genuine but were what I knew I should be feeling. I’m actually finding that spending time with my children is becoming an enjoyment again and not a chore. That might sound awful, but that is the reality for so many parents. Enjoying time with my toddler, my teenager, my baby, is something that had become a distant memory, and is  now something that I am starting to enjoy again.

This doesn’t mean that everything has suddenly got easier. It really hasn’t. Going out can still be my biggest cause of anxiety, and the easiest thing to find an excuse for. Finding the energy to do much else is still a struggle. Feeling like all I can do is sleep some days is still very common. But it’s small steps.

Over the weekend I have deliberately used my energy to do some small “jobs” that needed completing at home. I have realised over the last couple of months, that there are certain areas in the house that it helps me if they are ordered and tidy. I hate not having the energy to keep on top of it all. Unfortunately, this can trigger my OCD and my anxieties. Knowing things aren’t away in their place, where I have created a process and a plan causes me more stress. However, rather than tackling this when it is small, I can let it become a bigger problem. For me, recently, my bedroom has been this area. The pile of clothes and bits at the end of the bed has got bigger and bigger, and the stress in my head about it has got bigger and bigger. So I have tackled it, but know that now I can relax more. But I also know I will now want to make sure everything is in the right drawer etc, and will struggle when things are out of place.

Frustratingly it really is a catch 22. And I know it’s something that people don’t understand. Obsessive Compulsive Disorder is that….it’s a disorder. There is no explaining why I need things to be in a certain place in a drawer, and why I find it so stressful when they aren’t. It isn’t logical. Boy do I wish it was! I hate it. I hate that I can’t escape it or explain it.

The other thing I am realising, and having to come to terms with, is that this is going to be a new “normal”. Normal won’t be going back to how I used to be, but it is about mean learning to live with who I am now, and that this version of me is likely to be around for a long time. Until I have accepted this version as the here and now, and stop trying to mask it, I can’t expect others to accept it. They will keep thinking the performance is the reality.

So I will keep going with this new normal.

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A mouth smile and not a heart smile

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I’ve been honest before about my struggles with depression and post natal depression. I wasn’t truly surprised by being hit with it again this time around, but I have been surprised by how hard it has hit me, and how it has affected me in different ways.

This time it really hit me hard. I had days where all I could do was cry. A black cloud had come down, and it wasn’t shifting. I started retreating more and more into myself. Not communicating with people and wanting to be in my own safe bubble. I also felt my anxiety levels shoot up and I became  worried about so much. From little things like what my children were wearing and what people would think, to bigger things like what would happen if…. and imagine extreme situations. And then on top of it all my need to control and have things in an order I can cope with have spiraled.

This time I have taken the step of medication. Small tablets that have the power to stop the tears falling daily. But they have also had the power to stop other emotions too.

I have been really struggling to connect with the joy that I should be feeling with my children. I have struggled to rejoice in all the positives. It has been heartbreaking when I have been smiling at my daughter, as it helps her learn to smile, but they have been mouth smiles, not heart smiles. Celebrating milestones has never been a struggle before, but this time it is, and it hurts.

At the same time I am struggling to connect with my toddler, and struggling to find time for my teenager. They all need me. They all have their own needs as children, and as a parent, my role is to meet those needs. But at the moment I know there are days when I can’t. My husband is amazing, and he does so much, but I also know I am not meeting his needs at times either. My parenting guilt has never been greater than it is at the moment. I constantly feel like I am failing them.

But I have learnt that I also need to prioritise. I have learnt that while for some, going out daily helps, for me, being busy is exhausting. I need to find the balance. I need to know I have people I can see when I am able, but that they also know if I don’t see them, or respond immediately, then it is nothing personal. It is just me trying to prioritise me and my family. I have discovered an amazing online support network. Other mums who gave birth around the same time, that I can connect with as and when I am able. But they are there even at 2am! I also have friends I can see when I am able, but who also understand if I have to say ‘Not today’.

I have been lucky. My GP and health visitor have been supportive, and are helping me with next steps and moving forward with a long term solution, but it’s not going to be a quick and easy fix. This cloud can thin and clear a bit, but it may never completely go away. I’m not sure how I feel about that, but I don’t have a choice.

What I have discovered is that my job helps. It makes a difference. In the last few weeks I have started doing some of my keep in touch days, and they have helped me refocus and find a bit of who I am again. I also know that I need to make sure that I can get the balance right in September when I go back to work fully.

Right now I need to focus on me. And on being the best mum I can be to my 3 children. Meeting all their needs at all their different stages in life was never going to be easy, but I can only do the best I can. I carry mum guilt round on a daily basis, and wonder if all I can do is enough, but I can only be who I can be.

I don’t ever write my blog for sympathy, but I write it to show others that they are not alone, and to help me process where I am at. I also know it is how some people find out what is going on for me, and I am sorry that for some this is how they find out, but at the moment I can’t always talk it through. I have a small number of people I am able to talk about this with, and if that is you, then thank you so much for listening and being there. Especially when it can be one sided. And if it’s not you, then I am sorry. Please don’t take it personally, it’s just how I am coping.

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Please don’t think you know the answers….or have a strop cos you don’t get a cuddle!

Parenting for anyone is a journey.  It has highs and lows. Every day is another point of learning, of frustration, of joy, of laughter, of tears. For me, the last few weeks have been more of the lows and the tears than many would expect. My parenting journey has been an emotional challenge, that I was hoping it wouldn’t be. In the last 8 weeks I have struggled as having my daughter has not been the perfect time that I had dreamed it would be.

I know that at times of upheaval and change I have an even greater desire to be in control and for things to happen in the way I had expected. I also know that when it doesn’t I struggle with myself, my feelings of disappointment, and my urge to have everything in control. I also get more anxious as i feel life spiraling out of my control. I end up hitting rock bottom. I can get very depressed, and I find each day a challenge.

At the moment, most days are a challenge. Getting myself and my children dressed in the mornings often feels like a great achievement. To get out of the house, is an even greater task, both in terms of emotional preparation and in terms of physically getting there.

But in all these challenges I can keep hold of my children – with my baby this is often currently a very physical thing. I need to hold her for reassurance, but also so I know that I am not missing her cues for need of provision fro me – be it food, communication, space to sleep. I know people think they are helping me by offering to hold her, to take away the “burden” of having to do it all, but at the moment, I need to. When I feel safe and secure I will ask for help. I will ask for someone I trust to hold her, but I won’t just pass her around for cuddles.

With my toddler, it’s being able to give the cuddles, make the dinner, provide the stimulation required, sit on the floor and do the jigsaws. I need to know I am still meeting his needs. I also need days where all we do is chill together watching movies. I need to know I’m getting things right.

With my teenager, I need to know that I can still be there for him. I need to know I can drive him to college occasionally.  I need to be able to check in and chat over the day. I also need to be able to sit back and let him be the near adult that he is. I need to enable him.

And in amongst it all I need to be a wife that can support her husband. I need to be able to do bits around the house so that we can still function.

I know people will say to stop, let go of the feeling of have to, share some of it. But the reality at the moment is that at the moment I can’t. I haven’t got there yet. So sometimes I need space and that is where I am at. I am getting support from the right people, and I know I’ll get there in the end. I’m not always getting it right for the world, but right now it’s right for me.

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The toughest 5 days of parenting ever!

So a month in to being a mum of 3, and 17 years of being a mum, and nothing could have prepared me for the last week. I know other parent’s have been through the same, and I personally know parent’s who have been through worse, but for me, it has been the worst few days of parenting I have ever been through.

Within 48 hours I went from celebrating Christmas with my extended family, to sitting in a side room on a Paediatrics ward in hospital, watching my 3 week old daughter struggle to breathe. Her oxygen saturation levels couldn’t get over 80%, and at times she would go blue round her mouth as she coughed and couldn’t catch her breath. They put her on oxygen, and then the long night started. The put in a feeding tube, to rest her from having to juggle breathing and feeding. We were put in a side room, and I was given a bed alongside her cot. I was lucky if I got 2 hours sleep that night in more than 20 minute blocks.

Move on another 9 hours, and the consultant made the decision to move her quickly to the High Dependency area, put her on a pressurised oxygen system to aid her breathing, moved her straight on to IV fluids over the feeding tube, started her on IV antibiotics and took lots of blood for testing. Watching 3 doctors and 2 nurses focus solely on one tiny baby was not part of my Christmas holiday plans. Especially not focus on my baby.

Seeing your baby lying there, with 4 different wires/tubes coming off her, all doing a different job to help her breathe and keep going is scary. My response was to ask friends and family to start praying. It was the only comfort I could find in a place of fear, and almost desperation. Being told by the doctors that a delay of a few more hours in taking her in, probably made the difference to her needing to be ventilated and not, was scary. Realising how poorly she was, from what had been a cough a few hours before, to a cough that she couldn’t catch her breath from, to a baby on oxygen was a lot to take in. In the midst of it all, I was trying to communicate with Paul what was going on, arrange child care for our toddler and let our teenager know what had happened as he was away with friends.

We were so grateful for the speedy response, with offers of help and support, from our friends. Taking the toddler out for the day, and others having him overnight, meant it was one less thing to worry about. But as a mum, I never stop worrying. I miss both of my boys whenever I am not with them, so I couldn’t completely switch off. What I am discovering as a mum of 2 or 3, is that rather than share the love you had for your previous child across more, you become capable of a bigger capacity to love others, and so you can’t just turn it off, or switch the emotions to another child. You don’t stop loving or worrying about the others, when one needs a greater focus.

I did also discover that my daughter is a fighter. She proved the doctors wrong, by being able to cope with breastfeeding again a day earlier than they expected. (She had pulled out her feeding tube 3 times first, and they then agreed to let her try, expecting to have to put the tube back in.) She proved them wrong again by weaning herself off the oxygen sooner than expected, so that when they removed the pressurised oxygen to replace with the normal oxygen, she was about to keep her saturation at 97% without any oxygen!

I learnt a lot about the virus that is Broncholitis. It’s nasty. It causes a baby a lot of discomfort. I also have learnt how easy it, and the related RSV are to pass to babies. And as a result, I am more protective. I won’t be letting others to be kissing my baby anywhere near the mouth and nose – including my own children and Paul and I. I won’t be encouraging her to be passed round by lots of people at any one time. I don’t want to repeat that week again. It even beats having a child with peritonitis on the stress scale.

I’m also so grateful for the NHS. The staff who looked after my daughter we all phenemenal. From the care assistants that made sure I got all my meals. to the consultant who insisted on putting in all her IV lines etc himself to ensure minimal distress was caused to my daughter.

As I’ve always said, this blog is a bit of a processing space for me. It’s a safe place where I can share my feelings.It’s a place where I can get my feelings in some kind of order. So please see this as that. I am still processing, and this is an easy and safe way to do that. As a parent you need to find, or carve out, that space where you can process and work through situations, and this is where I can do that.