Please don’t think you know the answers….or have a strop cos you don’t get a cuddle!

Parenting for anyone is a journey.  It has highs and lows. Every day is another point of learning, of frustration, of joy, of laughter, of tears. For me, the last few weeks have been more of the lows and the tears than many would expect. My parenting journey has been an emotional challenge, that I was hoping it wouldn’t be. In the last 8 weeks I have struggled as having my daughter has not been the perfect time that I had dreamed it would be.

I know that at times of upheaval and change I have an even greater desire to be in control and for things to happen in the way I had expected. I also know that when it doesn’t I struggle with myself, my feelings of disappointment, and my urge to have everything in control. I also get more anxious as i feel life spiraling out of my control. I end up hitting rock bottom. I can get very depressed, and I find each day a challenge.

At the moment, most days are a challenge. Getting myself and my children dressed in the mornings often feels like a great achievement. To get out of the house, is an even greater task, both in terms of emotional preparation and in terms of physically getting there.

But in all these challenges I can keep hold of my children – with my baby this is often currently a very physical thing. I need to hold her for reassurance, but also so I know that I am not missing her cues for need of provision fro me – be it food, communication, space to sleep. I know people think they are helping me by offering to hold her, to take away the “burden” of having to do it all, but at the moment, I need to. When I feel safe and secure I will ask for help. I will ask for someone I trust to hold her, but I won’t just pass her around for cuddles.

With my toddler, it’s being able to give the cuddles, make the dinner, provide the stimulation required, sit on the floor and do the jigsaws. I need to know I am still meeting his needs. I also need days where all we do is chill together watching movies. I need to know I’m getting things right.

With my teenager, I need to know that I can still be there for him. I need to know I can drive him to college occasionally.  I need to be able to check in and chat over the day. I also need to be able to sit back and let him be the near adult that he is. I need to enable him.

And in amongst it all I need to be a wife that can support her husband. I need to be able to do bits around the house so that we can still function.

I know people will say to stop, let go of the feeling of have to, share some of it. But the reality at the moment is that at the moment I can’t. I haven’t got there yet. So sometimes I need space and that is where I am at. I am getting support from the right people, and I know I’ll get there in the end. I’m not always getting it right for the world, but right now it’s right for me.

im-very-cautious-about-who-has-access-to-me-lately-36131701

Advertisements

Allergies can be isolating & apparently inconvenient!

allergy

This image says a lot. It says how it feels to be the mum of a 5 month old baby with 6 known allergens, without even starting on food. The outline at the end highlights how I feel about introducing food to my baby. It honestly terrifies me!

But what this image doesn’t show is some of the isolation that comes as part of the allergies. Picnics in the park are only going to be possible on days when the pollen count is low, and even then I will be armed with antihistamine plus other bits we use to help keep the pollen at bay. If I don’t, then I will have a very uncomfortable little boy, with scratch marks all over his face as he scratches in response to the pollen irritating his skin, his eyes and his head. Even sitting in our own garden, which soon will have no plants or real grass in it, can cause reactions and we don’t know what to. It’s isolating as it is hard for us to leave him to go out. At the moment the allergens are so unknown leaving him with someone else is hard.

The isolation from conversations I can’t join in because “weaning” is going to be a very different process for us. All foods have to be introduced for a skin reaction and then an internal reaction before a spoonful can be tried.

Having to avoid key ingredients in food for the foreseeable future adds the problem of where we can go and eat. Using jars and pouches of preprepared baby food are not an option. Everything will have to be homemade until we have established what foods are also allergens.

Some people have made comments where you can see they don’t understand the implications. Yes a small amount of dairy can make my baby really ill. His contact reactions to some products like fabric conditioner are so severe the GP did an urgent allergy clinic referral. If he doesn’t have regular antihistamine when the pollen count is high then he struggles to breathe at night.

I’ve been told that his allergies are “inconvenient”. Yes they are….for him! They will be as he grows older too if he doesn’t outgrow them. Being allergic to sorbitol is probably one of the most “inconvenient”. Having to read the back of everything you buy to check the ingredients. It’s not a key allergen so it isn’t in bold like dairy or gluten products. It also occurs in things you wouldn’t realise, including toothpaste and shower gel!

It’s inconvenient that I can’t just pick things up from the shelves like every other parent. It’s inconvenient that I have to pay 2 to 3 times as much for products I have to buy – £5 for a tube of toothpaste! It’s inconvenient that I will spend an extra half hour or so on each shopping trip reading ingredients. It’s inconvenient that I have no quick wins on the first stages of eating. It’s inconvenient to have to go to various clinic appointments at the hospital as we try to understand all of the allergies and how best to treat them. So yes it is inconvenient for my baby and for me. Am I going to apologise if he is going to react to what someone else has on their clothes, or if I “over react” to him coming in to contact with a new substance or a known allergen…? No, I’m not. I will keep protecting him because I also see the consequences.

So yes it can be isolating. It is incredibly hard work to juggle at times. But it is who my baby is and I just have to deal with it daily.