Today I had one of those conversations that brought with it a huge sense of relief and gratitude for the healthcare professional that we have been referred to. It was with a physiotherapist. These are one of the few services that our son is now under, and one of the services that had to be delayed due to Covid-19. However today we were able to have a video consultation and a chat and actually start putting in place some plans that will slowly help making small steps forward.
One of the things I have struggled with both my sons is the amount I have had to do as a parent to get them the support they need for their various needs. With my younger son, especially, it has felt like I am banging my head against a brick wall at times to get the help he needs. 3 months ago we finally got the piece of paper that said ‘yes, he was entitled to support’ and that he had additional needs compared to other children of his age. But since then, it has been frustrating as all services and support went on hold. Today was a big step forward in the next stage of his journey.
Having this help mentally for me was a big thing. Being affirmed that we as parents are doing the right things, and being told that our little boy does need ongoing support with his mobility is comforting. Rather than feeling like we stick out because our 3 and a half year old still needs to use a buggy and can’t walk far, it’s actually been explained why, and we know we will be using one for a while to come. But also that is totally ok. Being told that we can be referred to Occupational Therapy for a chair to help him sit at a table properly, rather than having to work around with seats that don’t work brilliantly for his needs, and understanding why he still needs a highchair of sorts stopped the feelings of failing, and actually we reassuring.
The other big statement made in the call was “his little achievements are big achievements, and he will do them in his time and that is totally ok.” Which for us, as parents, has always been how we see it, but to have a healthcare professional state this, actually made a huge difference. They acknowledged how I was feeling and celebrated small things and will continue to celebrate the small steps. So yes we will talk about him learning to sit on a swing, we will celebrate the day he can sit upright totally unaided, we will celebrate the day he can walk all day without a pushchair or carrier. Because although these might seems out of sync for a child his age, for him they are huge huge leaps at the time that is right for him, and to get there will take a lot of effort and deserve a lot of praise!