Realising what is causing damage

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One of the things that I have started to realise over the last few weeks, is that there are certain things that trigger emotions and reactions within me that I don’t expect. I have realised that some people live in their own bubbles and miss what is going on in other peoples’ lives. Sometimes this is intentional, and sometimes this is completely unintentional. And this really sucks.

It makes me put up barriers in relationships as I take personally things that were never intended to be personal. That were written without any thought of me. And that is ok. That’s how it should be. But I need to find a way to cope with this and to accept that these are not aimed at me.

This has also made me more aware of what I share and how it can be perceived by others. It’s about remembering not everyone has the perfect relationship, had the perfect childhood, has the best relationship with their parents. Not everyone gets their happy ever after. Some people have to kiss a lot of frogs. Some people are having to discover who they are. I am still having to discover who I am.

At the moment the only way I can cope with this is to put barriers up and shut myself away. Cut myself off while I re-evaluate where I am at, and give myself time to recover. And I know that this then confuses people. It isn’t easy to explain to anyone, it’s just how it is at the moment. I don’t always understand it myself. I just know when it happens that I cope the best way I can at the moment.

This week I have had to deal with a middle of the night panic attack for the first time ever. It was scary. I don’t know what caused it and I didn’t know how to manage it, but I managed to get myself back under control after a couple of hours. The only way I have been able to cope since is to stay where I feel safe – my home. I have seen a couple of people, but in my space. I know I will have to face the fear of going out again soon, but that battle is for another day. The anxieties running through my head some days are crazy! They are often irrational. They are almost always unfounded.

I can’t explain the ins and outs of PND for everyone, or say how each individual will be affected. All I can say is what affects me. For me anxiety and obsessive and controlling behaviour are 2 of my big “symptoms” of the post natal depression. I don’t understand why, and i really don’t understand the nuances of it at times – why the position of a knife in the kitchen drawer will drive me crazy, but i’m ok putting away a sock without a pair for example. It’s illogical, and I know it is illogical, but it is how my body is and I am having to learn to manage it.

Writing this blog helps me express where I am at. At times I struggle to vocalise it, even to my amazing husband. But I can write it down. My only hope is that my musings and downloading of how I’m feeling helps someone else out there.

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6 months in and I’m starting to feel a bit more normal!

Newcastle Family Life_ What it was like suffering from PND

This week saw the 6 month mark since I gave birth. In the last month we’ve started to have some big changes…..she’s moved out of our bedroom,she’s starting trying food, she’s sitting up unaided. But for me the biggest change has been one that I’ve felt in me. In the last couple of weeks it’s started to feel like the horrid fog that is brought down by the postnatal depression is lifting a bit.

I’ve actually started to feel real joy in things again, rather than the forced feelings that weren’t genuine but were what I knew I should be feeling. I’m actually finding that spending time with my children is becoming an enjoyment again and not a chore. That might sound awful, but that is the reality for so many parents. Enjoying time with my toddler, my teenager, my baby, is something that had become a distant memory, and is  now something that I am starting to enjoy again.

This doesn’t mean that everything has suddenly got easier. It really hasn’t. Going out can still be my biggest cause of anxiety, and the easiest thing to find an excuse for. Finding the energy to do much else is still a struggle. Feeling like all I can do is sleep some days is still very common. But it’s small steps.

Over the weekend I have deliberately used my energy to do some small “jobs” that needed completing at home. I have realised over the last couple of months, that there are certain areas in the house that it helps me if they are ordered and tidy. I hate not having the energy to keep on top of it all. Unfortunately, this can trigger my OCD and my anxieties. Knowing things aren’t away in their place, where I have created a process and a plan causes me more stress. However, rather than tackling this when it is small, I can let it become a bigger problem. For me, recently, my bedroom has been this area. The pile of clothes and bits at the end of the bed has got bigger and bigger, and the stress in my head about it has got bigger and bigger. So I have tackled it, but know that now I can relax more. But I also know I will now want to make sure everything is in the right drawer etc, and will struggle when things are out of place.

Frustratingly it really is a catch 22. And I know it’s something that people don’t understand. Obsessive Compulsive Disorder is that….it’s a disorder. There is no explaining why I need things to be in a certain place in a drawer, and why I find it so stressful when they aren’t. It isn’t logical. Boy do I wish it was! I hate it. I hate that I can’t escape it or explain it.

The other thing I am realising, and having to come to terms with, is that this is going to be a new “normal”. Normal won’t be going back to how I used to be, but it is about mean learning to live with who I am now, and that this version of me is likely to be around for a long time. Until I have accepted this version as the here and now, and stop trying to mask it, I can’t expect others to accept it. They will keep thinking the performance is the reality.

So I will keep going with this new normal.

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Please don’t think you know the answers….or have a strop cos you don’t get a cuddle!

Parenting for anyone is a journey.  It has highs and lows. Every day is another point of learning, of frustration, of joy, of laughter, of tears. For me, the last few weeks have been more of the lows and the tears than many would expect. My parenting journey has been an emotional challenge, that I was hoping it wouldn’t be. In the last 8 weeks I have struggled as having my daughter has not been the perfect time that I had dreamed it would be.

I know that at times of upheaval and change I have an even greater desire to be in control and for things to happen in the way I had expected. I also know that when it doesn’t I struggle with myself, my feelings of disappointment, and my urge to have everything in control. I also get more anxious as i feel life spiraling out of my control. I end up hitting rock bottom. I can get very depressed, and I find each day a challenge.

At the moment, most days are a challenge. Getting myself and my children dressed in the mornings often feels like a great achievement. To get out of the house, is an even greater task, both in terms of emotional preparation and in terms of physically getting there.

But in all these challenges I can keep hold of my children – with my baby this is often currently a very physical thing. I need to hold her for reassurance, but also so I know that I am not missing her cues for need of provision fro me – be it food, communication, space to sleep. I know people think they are helping me by offering to hold her, to take away the “burden” of having to do it all, but at the moment, I need to. When I feel safe and secure I will ask for help. I will ask for someone I trust to hold her, but I won’t just pass her around for cuddles.

With my toddler, it’s being able to give the cuddles, make the dinner, provide the stimulation required, sit on the floor and do the jigsaws. I need to know I am still meeting his needs. I also need days where all we do is chill together watching movies. I need to know I’m getting things right.

With my teenager, I need to know that I can still be there for him. I need to know I can drive him to college occasionally.  I need to be able to check in and chat over the day. I also need to be able to sit back and let him be the near adult that he is. I need to enable him.

And in amongst it all I need to be a wife that can support her husband. I need to be able to do bits around the house so that we can still function.

I know people will say to stop, let go of the feeling of have to, share some of it. But the reality at the moment is that at the moment I can’t. I haven’t got there yet. So sometimes I need space and that is where I am at. I am getting support from the right people, and I know I’ll get there in the end. I’m not always getting it right for the world, but right now it’s right for me.

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Food aversions….another thing to juggle,and small steps are big achievements

I’ve talked a lot about the challenges involved with a child multiple allergies.  We are still very grateful that so far almost all are gut reactions, and there is only one that is looking like an IGE reaction. But we are still at a place where our little boy only has 25 foods that we know are safe. But in the last 4-6 months we’ve encountered a whole new game….. food aversion! 

Food aversion is different to being a picky eater.  It’s refusing to eat whole food groups or refusing to eat any food apart from very specific foods.  In our case it started as a refusal to eat anything that required chewing after a period of being ill.  It then also embraced refusing most vegetables and only wanting Ham and cucumber! Tough enough for a child with a varied diet, but trickier with such a limited diet.  

I must admit I am very grateful for our very supportive and understanding dietician.She talked through some good basic ground rules, and gave us some helpful literature. Learning not to make food a battle from early on has been really important. We’ve learnt to give him some closed choices on what he can eat. We’ve made eating about family time sitting together, and we’ve made it fun. But it is hard when you have a child refusing to eat. Even more so when you know every 6 months a health professional is checking his height and weight to make sure it’s all on target (whatever target means??? ) 

We became more reliant on the prescription formula,which still accounts for up to half of his daily calories. We’ve delayed taking a bottle away,as we know he needs to take the formula,even though we know for dental development we need to be moving away from a bottle. We’re having to choose our battles. 
In the last couple of months,and more so the last couple of weeks, we’re seeing big steps forward. New textures aren’t being rejected! We’ve successfully managed to introduce some new snacks that he will not only try, but devour! Things that just mean we can buy a few more things rather than have to make them from scratch! These for us are huge leaps forward! I never knew a little boy’s willingness to eat a pom bear would make me so happy!! 

Finding time for me

I’ve just spent a wonderful week with my husband and toddler in Dorset, but I’ve come home exhausted! I have felt like I need a other break to recover from this holiday, which seems so ungrateful. I realised 15 minutes after walking back through our front door what had gone wrong…. in 7 days away I hadn’t had 15 minutes totally to myself.

I have spent the week making sure my husband and son were happy. I planned in spending time with dear friends, who we don’t get to see very often, and I wouldn’t take back a second of that time. The week was a good break, and I don’t want to come across as ungrateful. But it has made me reflect on where I find time for me and how I find time to recharge my batteries. It has also made me realise I need to find a way to tell those closest to me that I need time and space to myself without them feeling rejected or unloved. If I don’t then I become grumpy, short tempered, agitated, and then I want to retreat further and further in to myself.

At home, I work for a fabulous organisation, I spend 16+ hours a week working at home in my own space. Yes I have video calls etc with colleagues, but I also get head space while I am working. (I know that might sound like a contradiction, having my own head space while working, but I get time where I am not having to engage directly with others and although I am generating outputs (often lots of outputs!!) I am also no having to energise others. I can only liken this to a rechargable battery. When in a torch, for example, when it is turned on it is being drained of power. When it is off, it is static-not draining but not recharging. When the battery is placed back on the charger it is gaining power again so that it can make the torch shine brighter and for longer.

A few years ago realising I was an outgoing introvert was a big turning point, and since then I have kept trying to carve out space for me. Be it half an hour in bed on my own each evening with a book, or making the most of the nap times in the day since having a baby. Taking that time for me has become crucial. I had forgotten how when on holiday routine changes, and there are others with expectations. I also had expectations, and we’d never discussed them.

I know before we go away for much longer in the summer we need to have the conversations about how each of our needs are met. I know I am more complicated at times to read, but since having a baby and now a toddler, I know I need to carve out that space for me even more than ever. Parenting is still very much a journey, possibly even more so the second time round! But this time I think I am learning more and more about myself!

Parenting guilt

One thing I’ve realised the second time around is the amount of guilt I carry as a parent. It isn’t across 1 specific area, in fact it’s across all areas and with both boys!! I feel guilty that I need to work. Not for the money so much, but for me, for my sanity! I then feel guilty that I am enjoying my work and my time away from being mum. I even don’t have a problem with doing extra hours, until I feel guilty that I’m not at home being mum.

I feel guilty that my husband has been so amazing at getting up in the night, as we have discovered that not getting enough sleep is causing me to have more migraines. I feel guilty if I go out in the evening and then the baby decides that is the evening to not sleep, so my husband gets no peace.

But I also feel guilty when I am at home spending time with the baby. I feel bad because all it seems I am doing is playing. I’m having fun…..exhausting fun, but fun. I feel guilty that the baby takes the attention away from the teenager, and guilty that the teenager takes the attention away from the baby.

I know, as I’ve said before, that I am an anxious parent. I know because of this I constantly seek affirmation and reassurance that I’m doing the right thing. I am the kind of person that thinks if I have inadvertently offended someone they will hold on to it and hold it against me for weeks. Or if i’ve forgotten something it will be catastrophic and I won’t be able to move on. I know all this about myself and know it affects my guilt too.

I think I also know there is no perfect work life balance. I will spending life knowing i’m not always getting it right. I just need to learn to accept that I am a normal person, who will make mistakes.  My boys love me, I know that. I just have to relax and accept that I can only be the best I can be, and that that is enough

“There will be so many times you feel like you’ve failed.  But in the eyes, heart, and mind of your child you are a super mom.” ~Stephanie Precourt, Listen to your Mother

Allergies can be isolating & apparently inconvenient!

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This image says a lot. It says how it feels to be the mum of a 5 month old baby with 6 known allergens, without even starting on food. The outline at the end highlights how I feel about introducing food to my baby. It honestly terrifies me!

But what this image doesn’t show is some of the isolation that comes as part of the allergies. Picnics in the park are only going to be possible on days when the pollen count is low, and even then I will be armed with antihistamine plus other bits we use to help keep the pollen at bay. If I don’t, then I will have a very uncomfortable little boy, with scratch marks all over his face as he scratches in response to the pollen irritating his skin, his eyes and his head. Even sitting in our own garden, which soon will have no plants or real grass in it, can cause reactions and we don’t know what to. It’s isolating as it is hard for us to leave him to go out. At the moment the allergens are so unknown leaving him with someone else is hard.

The isolation from conversations I can’t join in because “weaning” is going to be a very different process for us. All foods have to be introduced for a skin reaction and then an internal reaction before a spoonful can be tried.

Having to avoid key ingredients in food for the foreseeable future adds the problem of where we can go and eat. Using jars and pouches of preprepared baby food are not an option. Everything will have to be homemade until we have established what foods are also allergens.

Some people have made comments where you can see they don’t understand the implications. Yes a small amount of dairy can make my baby really ill. His contact reactions to some products like fabric conditioner are so severe the GP did an urgent allergy clinic referral. If he doesn’t have regular antihistamine when the pollen count is high then he struggles to breathe at night.

I’ve been told that his allergies are “inconvenient”. Yes they are….for him! They will be as he grows older too if he doesn’t outgrow them. Being allergic to sorbitol is probably one of the most “inconvenient”. Having to read the back of everything you buy to check the ingredients. It’s not a key allergen so it isn’t in bold like dairy or gluten products. It also occurs in things you wouldn’t realise, including toothpaste and shower gel!

It’s inconvenient that I can’t just pick things up from the shelves like every other parent. It’s inconvenient that I have to pay 2 to 3 times as much for products I have to buy – £5 for a tube of toothpaste! It’s inconvenient that I will spend an extra half hour or so on each shopping trip reading ingredients. It’s inconvenient that I have no quick wins on the first stages of eating. It’s inconvenient to have to go to various clinic appointments at the hospital as we try to understand all of the allergies and how best to treat them. So yes it is inconvenient for my baby and for me. Am I going to apologise if he is going to react to what someone else has on their clothes, or if I “over react” to him coming in to contact with a new substance or a known allergen…? No, I’m not. I will keep protecting him because I also see the consequences.

So yes it can be isolating. It is incredibly hard work to juggle at times. But it is who my baby is and I just have to deal with it daily.