Allergies take 3! (and more!!)

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People asked when I was pregnant, what was the chance of the baby having the same allergies as my toddler. It really was 50/50. 2 weeks in, and we already had the first bit of the answer….3 out of 3 children had CMPA. A dairy allergy. In a space of 6 hours I watched my contented baby turn into a miserable, writhing in pain little girl, producing nappies that were not “normal”.

I was so grateful that I had a supportive Health Visitor, who straight away put  my daughter on to the NHS allergy pathway, with a referral to the dietitian, and we made an instant appointment with the GP.

But one thing we didn’t know was how severe her allergy to cows milk protein was, or whether it would be her only allergy. What we did know was that this meant that weaning was going to have to be the allergy led method again. Following on from dietitian advice, we started with our son’s known “safe” foods, trying to build up a base of foods, before testing some of his allergens.

I’ll never forget the day I went for the first of his known allergens. I was nervous. Knowing that this could cause my daughter pain or worse, was not a great feeling. But I had to do it. We were lucky. The first one we tried was apple, and all was ok! Phew! And we tried that because it is added to so much that it was a bonus if she could have it. Maybe I then thought it wouldn’t be so bad or my mind just thought lets go for it, but I then tried another allergen. This time it was one where my son was allergic to  a whole food “family”. The first time seemed ok, so we went on for attempt 2. That night, we did not get much sleep. She was so unhappy. In pain, drawing her legs up, crying, unsettled. We thought it was the sweet potato, but to be sure, we had to try again a week or so later. And yes, it happened again. One little girl, very unhappy. And so her allergen list started.

What we have found is that when she has gut based reactions, they are generally more severe than her brother’s. For example, she can’t tolerate even medical grade coconut products, but her brother can. She can’t tolerate any fish we have tried, her brother can tolerate white fish but not oily fish. She can’t even cope with peppercorns or ground pepper from the nightshade family, he can cope with a little.

But we’ve also got a little girl that doesn’t like to have lumps in her food. After 3 months of introducing food, she will finally have a bit of texture, but this has been an additional challenge. The dietitian recommended focusing on textures over new foods, as this was more important, so the introduction of new foods has gone on hold. We’ve got many more things to try.

So it’s actually been trickier this time round. We don’t have all the answers for our daughter yet and we don’t know if it will be worse than our son or better. But we know it’s currently a very similar path. If we go away, even for 1 night, we take 2 bottles of antihistamines, 2 inhalers, snacks and milk for both children, probiotics to help their guts. The list goes on. Currently there is no epi pen in the kit, but that doesn’t mean their won’t ever be. I’m just grateful that neither has had a reaction that needs one.

So, life as an allergy mum continues. And the one thing I am grateful for is the fact that if nothing else I can be a support to others who are journey some of a similar path.

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Realising some people don’t have a clue!

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One of the things I have had to do in recent weeks and months is learn that it is ok to put up barriers and set boundaries. This is actually healthy. I’m also learning how much I need to value and respect myself and my time. This has meant I also now know that my friends should be respecting and valuing me in the same way, and they should be placing a level of value on my time.

Sadly I have also realised that some people don’t do this. I know that all people are fallible. I know that we all make mistakes. I’m certainly not saying that I don’t make mistakes or upset people. But I have realised that trust and respect come hand in hand, and both have to be earned and maintained. Once it is tossed away, the damage can be irreparable.

My priorities have to be my faith, my family and myself. My self care includes making sure I surround myself with those who are building me up and not knocking me down. This doesn’t mean only surrounding myself with people in positive happy moods – in fact, I have been able to be a support to others while working through things for myself. And knowing I can be, really does help. But what it does mean is making sure that those who are in my life add value in one way or another.

For example, I have an amazing network of support that I have talked about before, thanks to a group of mums I met online who all gave birth at the same time as me. They are there pretty much 24/7. They know me so well and can build me up on my down days, celebrate with me on the good days, and make me laugh most days! The time I invest in them is so valuable to me and I know they are there.

But I have also learnt that some physical friendships are more one sided. I have learnt that my expectations of people and their commitment to time and relationship building can be different to the other person. And because of the loyal person I am, I have ignored this, but I didn’t realise the damage that this was doing. So I am now trying to be selfish in someways and say this isn’t healthy for me.

People say “talk it through with them” or “they may not know what they are doing”, and I totally understand that this is often true, but  the place I am in at the moment means I don’t have the energy for the confrontation or the emotional space for it.

I know this post could be seen as “controversial” or stirring the pot, but as ever my blog is honest and where I am at. I won’t be answering people who ask “Is it me?” in response to this, as actually that will show how little they have taken in.

Life is a cycle of seasons. And friendships can move in those seasons, and that is 100% ok.

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Realising what is causing damage

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One of the things that I have started to realise over the last few weeks, is that there are certain things that trigger emotions and reactions within me that I don’t expect. I have realised that some people live in their own bubbles and miss what is going on in other peoples’ lives. Sometimes this is intentional, and sometimes this is completely unintentional. And this really sucks.

It makes me put up barriers in relationships as I take personally things that were never intended to be personal. That were written without any thought of me. And that is ok. That’s how it should be. But I need to find a way to cope with this and to accept that these are not aimed at me.

This has also made me more aware of what I share and how it can be perceived by others. It’s about remembering not everyone has the perfect relationship, had the perfect childhood, has the best relationship with their parents. Not everyone gets their happy ever after. Some people have to kiss a lot of frogs. Some people are having to discover who they are. I am still having to discover who I am.

At the moment the only way I can cope with this is to put barriers up and shut myself away. Cut myself off while I re-evaluate where I am at, and give myself time to recover. And I know that this then confuses people. It isn’t easy to explain to anyone, it’s just how it is at the moment. I don’t always understand it myself. I just know when it happens that I cope the best way I can at the moment.

This week I have had to deal with a middle of the night panic attack for the first time ever. It was scary. I don’t know what caused it and I didn’t know how to manage it, but I managed to get myself back under control after a couple of hours. The only way I have been able to cope since is to stay where I feel safe – my home. I have seen a couple of people, but in my space. I know I will have to face the fear of going out again soon, but that battle is for another day. The anxieties running through my head some days are crazy! They are often irrational. They are almost always unfounded.

I can’t explain the ins and outs of PND for everyone, or say how each individual will be affected. All I can say is what affects me. For me anxiety and obsessive and controlling behaviour are 2 of my big “symptoms” of the post natal depression. I don’t understand why, and i really don’t understand the nuances of it at times – why the position of a knife in the kitchen drawer will drive me crazy, but i’m ok putting away a sock without a pair for example. It’s illogical, and I know it is illogical, but it is how my body is and I am having to learn to manage it.

Writing this blog helps me express where I am at. At times I struggle to vocalise it, even to my amazing husband. But I can write it down. My only hope is that my musings and downloading of how I’m feeling helps someone else out there.

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Getting ready for the next stage

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One of the things I am really struggling with at the moment is every time someone tells me that my little girl is growing up. I know that she will be my last baby, and so in someways I want to make all of this time last as long as possible.

In 2 days time she will be 7 months old. That is more than half of her first year gone, and I feel at times like I have missed so much of the first few months. I am constantly trying to capture in my mind and my heart each moment, as I know I can never have them again. While I am celebrating her moving on in her development, part of me keeps feeling ‘Not yet’! Part of me isn’t ready yet for her to start being mobile, becoming more independent, needing me less.

And I know that some of this is a long long way off.

My toddler still needs me daily. My teenager needs me – but not as much as it feels like I need him. And my daughter needs me. I know she does. But I also know that she doesn’t always miss me like I miss her. I know that none of my children do.

My husband and I joke about my behaviour when I am apart from my teenage son for any period of time. I feel like I have lost an arm or a leg. I find it really hard. I struggle with letting go, as I can still remember holding him in my arms nearly 18 years ago, and  realising that this small person was suddenly totally dependent on me.

I struggle with how willingly my toddler runs off to his childminder – and only because she is so amazing at what she does, and he absolutely adores going. But I struggle because it is a time in his week when I am not needed.

At the moment I am struggling with the idea of returning to work. I love my job. I have really enjoyed my Keeping In Touch days. I adored the day I had back in the office a couple of weeks ago. I love my colleagues. I love what we do. But I am struggling with the idea of not being there for my daughter all day every day. It’s irrational, I know. I know she will be having an amazing time with our wonderful friend and childminder. I know I can touch base whenever I need to. But I am struggling.

What I have realised is that I am human, I am normal. I am not superwoman. I am allowed to feel like this. Loving my children is the hardest but the easiest thing to do, and each stage require me to let go a little bit more.

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A fine line….

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I’m discovering how there is a really fine line between me feeling up and me feeling down. I often don’t know when I am close to teetering over the line. I am starting to recognise the triggers though. As I posted a few days ago, I have had a really positive few days. But I also knew that this didn’t mean I was permanently back on the up.

This afternoon I have felt myself sliding back down. Parenting three children (and yes my teenager is still my child) is a juggling act. As I have said before, all 3 have different needs and demands on my time. This week I have been having to manage a toddler who has had an allergic reaction to another food. As a result, he has been crabby, clingy and just not himself. Juggling that with a 6 month old who is trying to reach further, move more, do more, but constantly toppling, and also needing greater input and awake for longer, has been exhausting. The break in the madness was then going out for half an hour to pick up the teenager! But all of this, combined with an early start, and a full on, but highly enjoyable day before, has dragged me back down.

I am still having to learn where to draw a line and give myself a break. When I topple over the line, I find myself getting into bad, negative cycles. I start to compare myself, my life, my children with those of others. I compare with friends, with relatives, with strangers who post in random places on social media. I get myself down because I feel I am failing my child(ren) because they are not achieving their maximum potential.

I struggle because my baby isn’t keen on eating, when my friend’s child who is younger will chomp through 3 meals. I struggle because my toddler isn’t as eloquent as other children his age. I struggle because I can’t do with my children everything I feel I should. I struggle because I don’t want to leave the safety of my house. I want to stay in my safety blanket. I know I need to find space to stop and take a break when this happens, but it is finding the safest way to do that.

I know I made a mistake when I got to a similar point when my toddler was younger. I cut myself off from people completely, and nearly lost completely some very valuable friendships. This time I am trying to get the balance right. To be able to take a step back without cutting everything off. I’m still not always getting it right, but I am trying, and I am learning.

I hate the struggles that PND gives me. I hate the impact it has on my life at the flick of a switch. But I am learning that I there is a trigger, and I am trying to stop the switch being flicked.

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Insecurities… not seen by others but can be crippling

I live every day feeling that I’m not good enough at the moment. My insecurities can be bad at the best of times, but at the moment they are huge. My insecurities trigger moments of jealousy, self doubt, feelings of neglect, of being over looked or left out.

People can say “Don’t be silly!” or “It’s all in your head!” but that doesn’t take away the feelings. The feelings are strong and are real. Some moments are worse than others. Seeing things posted on social media that you weren’t invited to, but would have loved to attend, seeing other friends getting together without you, hearing about plans made. This doesn’t mean how I’m feeling is right or justified, but it’s where I’m at.

When I say I have anxiety, it’s not just about practical things, it runs into feelings and emotions. It affects my self worth. It affects my self belief. And I hate it! I hate doubting my friendships, my relationships, my capabilities I hate feeling inside that I’m inferior. Some days it makes me want to just walk away from everything and live in a bubble with my family.

The triggers are varied and unpredictable, which doesn’t help others really. It can range from lack of sleep, to absolutely nothing I can pinpoint! And then it eats away. The damage it can do can be long term. I’ll often, when really struggling, choose to cut myself off from people, from the world. My head is saying ‘If people can’t be bothered with me, then I won’t bother with them so they can’t hurt me!’ But on the flip side my heart is screaming ‘Please let me know you value me, you want me in your life!’

Little things can make a huge difference. But also no one should feel that they have to acknowledge. I never truly appreciated the value of the words “thank you” till my insecurities and anxieties took over. Someone acknowledging you and saying hello, or checking in can make such a difference.

I know over time these insecurities will fade and be less of a struggle. But these struggles are real and they are a battle. They can be exhausting!

The fear of the scales

This contraption has been the cause of some of my biggest problems since giving birth. It has caused me panic attacks, it has caused tears, it makes a fear bubble up inside me every time I have to get her weighed.

I know that the fear stems from the first few weeks of her life, when every time she hadn’t gained weight they would be sending us back to hospital. But it has left a deep rooted fear that I will be judged and comments will be made if at any point she drops off her weight curve. Things like get bringing up more milk than normal after feeds because she’s full of mucous from a cold or she’s been gumming lots and creating acidic saliva make me worry. I dread the times when we have to put her on the scales.

As I’ve said before, my health visitor is amazingly supportive, and she’ll come to the house to do the weighing, rather than getting me to go to tbe clinic, where I’ve had meltdowns because I’m panicking. But I still have to get her and her brother weighed every time we see the dietician.

There is no easy fix at the moment, and like all my other anxieties it’s made worse by tbe post natal depression, but it doesn’t take the fear away. Like everything else, it’s another fear I have to overcome, and each of them is a baby step.