Some of the toughest days as a parent are the ones when you can’t take away the pain that is making your child hurt. Whatever age, your gut instinct is to protect them and to stop pain.
For nearly 3 weeks we’ve had to deal with the aftermath of the worst allergic reaction with our toddler since they realised he couldn’t have cow’s milk. The biggest problem this time has been that it totally unbalanced his gut. So we’ve had a very unhappy little boy. All because of a few mouthfuls of a new food item – mackerel!!
It has been so hard. You can’t explain easily to a 16 month old that they are going to feel sore. You can only hold them, and at times feel pretty useless that you can do no more than provide cuddles. Encouraging him to eat, when he knows food is linked to some of the pain he’s going through, is tough. But knowing that he needs to eat to have the energy to get better makes it harder. You do all the right things – staple foods, probiotics, water, cuddles, sleep – but it doesn’t make it instantly better.
And then you have the debate and juggle, do we leave him and go to work as normal, or do we stay at home. I know we are blessed with a fabulous childminder who provides him with the most loving environment, and my in-laws who adore him too. But it doesn’t make the choice easier or stop you, as a parent, worrying when he’s not with you.
For me it is one of the juggles I will always struggle with. In fact I struggle with it with both of my boys. Do I send the older one to school or not? It’s always a balancing act. I don’t think it gets easier in some ways as it is different decisions with different impacts, but you still always want to get it right and to keep you child free from harm.
So there will be days when I can’t take the pain away, but as I mum I will always provide the cuddles.
This image says a lot. It says how it feels to be the mum of a 5 month old baby with 6 known allergens, without even starting on food. The outline at the end highlights how I feel about introducing food to my baby. It honestly terrifies me!
But what this image doesn’t show is some of the isolation that comes as part of the allergies. Picnics in the park are only going to be possible on days when the pollen count is low, and even then I will be armed with antihistamine plus other bits we use to help keep the pollen at bay. If I don’t, then I will have a very uncomfortable little boy, with scratch marks all over his face as he scratches in response to the pollen irritating his skin, his eyes and his head. Even sitting in our own garden, which soon will have no plants or real grass in it, can cause reactions and we don’t know what to. It’s isolating as it is hard for us to leave him to go out. At the moment the allergens are so unknown leaving him with someone else is hard.
The isolation from conversations I can’t join in because “weaning” is going to be a very different process for us. All foods have to be introduced for a skin reaction and then an internal reaction before a spoonful can be tried.
Having to avoid key ingredients in food for the foreseeable future adds the problem of where we can go and eat. Using jars and pouches of preprepared baby food are not an option. Everything will have to be homemade until we have established what foods are also allergens.
Some people have made comments where you can see they don’t understand the implications. Yes a small amount of dairy can make my baby really ill. His contact reactions to some products like fabric conditioner are so severe the GP did an urgent allergy clinic referral. If he doesn’t have regular antihistamine when the pollen count is high then he struggles to breathe at night.
I’ve been told that his allergies are “inconvenient”. Yes they are….for him! They will be as he grows older too if he doesn’t outgrow them. Being allergic to sorbitol is probably one of the most “inconvenient”. Having to read the back of everything you buy to check the ingredients. It’s not a key allergen so it isn’t in bold like dairy or gluten products. It also occurs in things you wouldn’t realise, including toothpaste and shower gel!
It’s inconvenient that I can’t just pick things up from the shelves like every other parent. It’s inconvenient that I have to pay 2 to 3 times as much for products I have to buy – £5 for a tube of toothpaste! It’s inconvenient that I will spend an extra half hour or so on each shopping trip reading ingredients. It’s inconvenient that I have no quick wins on the first stages of eating. It’s inconvenient to have to go to various clinic appointments at the hospital as we try to understand all of the allergies and how best to treat them. So yes it is inconvenient for my baby and for me. Am I going to apologise if he is going to react to what someone else has on their clothes, or if I “over react” to him coming in to contact with a new substance or a known allergen…? No, I’m not. I will keep protecting him because I also see the consequences.
So yes it can be isolating. It is incredibly hard work to juggle at times. But it is who my baby is and I just have to deal with it daily.