One piece of paper makes such a difference

Lonely

One of the things I have tried to highlight is how lonely the parenting journey can be when you have a child with “special needs”. I have been so grateful that I have had a couple of amazingly supportive friends who have been on similar journeys. It is a minefield and having friends who have had to walk some of the path before you is a real blessing.

Today we got a piece of paper that I never thought I would be happy to receive. We got the confirmation of our son’s Early Support panel hearing and that he is entitled to support. This will make a difference to his life and ours, both in what is available to him from professionals, but also when he starts school the support that the school will be providing. It also will help when we move. It shows that he’s already been assessed and is in the “system”. It means we don’t have to go through the lengthy referrals process for this part again.

I never thought I would be happy in having it confirmed that my child needs additional help from a young age, and that he has “significant and complex additional needs” but today I felt a degree of relief that my mummy instincts haven’t been wrong, and that my happy boy needed more support.

The next steps, when they are able to happen, will involve a lot more appointments, and time but it will be worth it.

Sylvia-Inspirational-Quotes

Meltdowns are the norm

Screen Shot 2018-02-25 at 10.57.37 AM

Meltdown is not a term I use lightly when it comes to describing my son’s behaviour at times. It used to be a term I would throw around until I experienced an hour and a half full-on meltdown where nothing could console my boy. His meltdowns generally come from a place of not understanding or being understood. He goes beyond frustration to a point where he can not regain control and we can’t “snap him out of it.”

The thing we have had to learn is that they are generally not coming from misbehaviour or stubbornness. They are when he hits a place of being unable to process.

But we are also having to decipher what is normal “threenager” behaviour, and what isn’t.

A 45-minute meltdown due to tiredness is not uncommon. But then a tantrum from a tired three-year-old is also not uncommon. I guess the less common part is the inability to distract them or help them regain control. A lot of the time it is about finding the right “thing” that works for them. We have discovered that Lego seems to be the great “thing.” It is the one activity that he will concentrate on for literally hours. Not the big duplo blocks – those are baby’s he says. But proper lego. It calms him in a way nothing else can.

Luckily we have a huge supply of the tiny, foot hurting, bricks from his older brother. However, currently, we are limited by the space we have available for where it is safe to be played with. Our daughter is still into putting things in her mouth, and our spare living room is full of boxes. When we move soon, one of the things we are doing is separating them into their own rooms. As well as enabling them to have their own sleep routines, this also means that our son can have the lego out and in a space that is his to retreat into.

The other hard thing that comes with his meltdowns is the physical lashing out. In one meltdown I can be pushed away, kicked, hit, screamed at. Toys or other objects can be launched out of an inability to control. It’s exhausting for him and for us.

But sadly there are limits to what we can do. Telling him off when he’s out of control doesn’t help. Getting angry at him or punishing him doesn’t help. All we can do is stop, make him safe, and try to understand the trigger to reduce the risk of it happening again.

We’re learning about his behaviours constantly. We’re understanding a little more some days, and others feeling like we are back to square one. And we know this is going to continue for potentially a long while.

As a parent, I know we like to use phrases like “my child is having a meltdown.” But I would ask of you, are you overusing a phrase that for another child it is key to differentiate between tantrum and meltdown? I’m not trying to belittle what you experience with your child. Tantrums really are hard enough. But can you stop and think about whether your terminology is fair and accurate?

Some days I just want to give up on this parenting thing. I am exhausted from having two children that function at an almost similar point developmentally. I don’t have the answers to people’s questions about what the future holds. But then I get the cuddle or the smile or the “thank you” that melts my heart and makes each struggle so worthwhile.

1080-12-Reasons-to-love-1

 

A start of a long journey

8411547c00870351ac737aca480b347d

Today was an interesting day. It was a day where we started to get some answers, but at the same time threw up a million more questions. It’s also been a day that has, for me, thrown up lots of different emotions, which I am still processing.

So today it was confirmed that our fabulous 3 year old boy has significant developmental delays. And keeping in with the honesty of my blogging about parenting over the last three years, I am going to keep sharing in here as we navigate the next few days, weeks, months and now we know years. For me one of the key things that people should take away from this is that our son is our beautiful, loving, caring son who brings us  so much joy. Also these posts won’t be for sympathy or pity but they are my way of processing, plus hopefully something I write might help and inspire other parents on a similar journey.

So where are we at…..

Today the tests showed that our son is 12-18 months delayed in most areas of his development, although one area he is 24 months delayed. This means we have a very frustrated little boy at times, who wants to be able to do the same as his friends, but finds it hard or at times impossible. Today also was a reality check in that there is no quick fix. There are various therapies that can support different parts of his development, but this isn’t going to be a case of a bit of treatment and he will be achieving the goals for a child of 3 years and 2 months. Some therapies will have a bigger impact than others. Some things that are tried may not make any difference.

Do we know the cause?

In a quick answer….No. But there are some suspicions or theories that need to be investigated and will be looked into over the coming months. We do know that my placenta failed before he was born and that the impact of this would not be known until he started (or failed) to reach milestones. But nothing can be confirmed or eliminated as a cause. It might be one of those permanently unanswered questions in life!

Whats next?

Appointments, appointments and more appointments! Juggling work, life, parenting and appointments is going to be my new challenge. But it will all work out. Making sure our daughter gets the time she needs too will also be key. We will just have to switch priorities if needed.

If you’ve got this far, then thank you. If you’ve got questions, ask, and we’ll answer if we can. And just keep being normal with us! He is our amazing boy and we will help him be the best he can be at being him!

7267b4078f9135ad3f75d8ae0cf70b6b

High functioning….in control??

82950506_610545682854047_7390164872618573824_o

A friend shared this image this week and it really resonated with me, and I found it suddenly explained why people perceive me the way they do, and how come I come away feeling so exhausted at times!

One of my biggest realisations, as i’ve shared before, was that I am an introvert and not an extrovert, but I think this chart is close in helping me understand more about how and why I function like it do.

I will admit I am a huge over thinker. I am always thinking the worst or 5 steps ahead of where I am today. I am trying to stop this as much as I can. It really challenges my faith at times, and is the one place where I do just have to take a deep breath and pass it all over to God.

People pleasing is a big thing for me. I want to keep everyone else happy, even when I end up frustrating or compromising myself in the process. I am starting to say no to people and know that that is ok, but this is all interlinked with setting boundaries. Setting boundaries in some situations is easier than others. I have started to believe more in my self worth and know, especially in relationships, that I am worth more and that I shouldn’t accept being treated as anything less than my worth. I have realised that true friends and those that really matter treat you with the value you are worth.

People seeing me as outgoing and helpful have at times abused these traits to over burden me and to keep asking for themselves and taking from me, not seeing the bigger picture. But it also means there is a protective smoke screen I hide behind.

I really identify with the fear of failure. I hate letting people down. I hate doing a project that doesn’t work out. Even when giving birth to my eldest, my final incentive was to deliver him naturally, as anything else in my head at that point was failure. (I know in reality that it wouldn’t have been, and just having my baby here would have been enough, but that is where my head was at.) Even now fear of failure runs through how I work, and how I respond to things. It’s linked to people pleasing and wanting to keep everyone happy. But to colleagues I am seen as hard working and detailed, and helpful.

Don’t get me wrong, I do pay attention to detail and I do work hard and I want to be helpful, but when my anxiety is high, or one of my triggers is hit, I almost go into these traits in overdrive.

So is this list or chart a negative thing or a positive thing? I think for me it is positive, in that it is helping me to understand more and more about my anxiety and how it affects my life on a daily basis. My anxiety attacks are getting fewer, but there is always an underlying level of anxiety in day to day living.

But my anxiety currently isn’t always controlling me any more. I’m not always controlling it, but i’m more in control that I have been. I am high functioning within my anxiety, and I know many others with anxiety that are too, and that is also ok. But I am also trying to learn that showing the weakness is also ok.

d45cfacee7281ac8b1c0fa31a2554f9e

12 months gone in a flash

cute-mommy-and-son-quotes

12 months ago I entered hospital knowing within the next few days I was going to become a mummy again for the last time. I knew I was going to meet my little girl. But I also knew I could be looking at another long induction, I knew there were risks, I knew so much, but I also knew nothing. I knew nothing of this little girl that had been growing inside me for 38 weeks. I had struggled to bond with her during pregnancy as i’d felt minimal movement all the way through. I had hated the pregnancy. I wanted that part to be over. But I was also excited. I was excited to meet this little person.

In the end, she decided that she was going to make a quick arrival into the world. So quick the midwife didn’t have time to make any notes or observations! My daughter’s birth set the pace of the last 12 months.

Nicknamed “small but mighty” she fought every battle she came up against in those early weeks and months, and let the world know she was a fighter. She has ruled the roost at home and made it very clear who is the boss to her brothers!

The year has been one full of bittersweet moments for me. I have adored every moment as she has grown and developed from a tiny tiny baby, to a dinky toddler (and I can call her that as she’s now walking!) But i’ve also had this sadness knowing that I won’t have another baby going through these milestones again. I’ve been battling with this, as it seems so selfish. I know there are so many out there who would love just one child of their own, and I have 3. But I also know I had a desire to have 3. I know how much I love being a mum and how at times I feel I miss out on things because I am a working mum.

This year I have carried guilt at feeling like I’m wishing days away while I was looking forward to returning to work. Then feeling guilty for being at work. I’ve had days when I just want those moments to keep going and never stop. I’ve tried to capture them in words, pictures and in my heart. The time seems  like it has slipped past without me noticing.

In these 12 months I’ve also become the parent of an adult! And now when I look back I feel that there are many moments of my son’s life I have missed. I feel like there are memories I am already forgetting. It’s reminded me how time with my children is so precious whatever stage they are at. I want to value and hold each second and cherish it. But I also want all my children to reach their potential at every stage of their lives and fly high in whatever way that is.

Parenting 3 is something I resolutely vowed I would never do, but actually I think it’s working ok. I’m not always getting it right, and I am always feeling mum guilt over one or other of my children. People ask is 3 easier than 2, harder than 2? Honestly…..3 is different to 2. Some days it is easier, some days it is harder. But every day is a memory I hold on to.

Family-Memory-Sayings-025

Commitment…as a wife, parent, friend, colleague

I’ve been thinking about commitment a lot over the last couple of weeks, as my eldest child turned 18. I made a commitment to him from the moment he was born that he would always come first. And I really hope that I’ve always kept that promise. That promise didn’t mean he always got what he wanted, or that he liked everything I said or did, but I meant that he was always a the forefront of my choices and plans.

And now that he’s turned 18, that commitment doesn’t end. And because he has 2 siblings that commitment doesn’t change. I have to change to adapt to putting my children and their individual needs first, and work out the compromises that need to be made. Within that, I also have my commitment to my husband. He is my best friend and my partner for life. He will be along side me long after all our children have flown the nest. My commitment to him is to keep investing in us through the tough times as well as the great times.

Anyone who truly knows me, will know that I give my 100% commitment to everything that I do. Be it friendship, work, hobbies, faith, life. That is a core part of who I am. As a result I don’t have a huge circle of friends, but those I have I give everything to. A lunch or coffee date will take priority as I give them my time. I know how much someone giving their time to me like that matters to me, so I value it when I give it to others too. Yes this can set me up for hurt, but it is a core part of me.

My commitment to my younger children means commitment to the menial tasks like making meals, sterilising bottles, providing them with a safe home environment, feeding them, clothing them. But it also means a commitment to being there forever. You can’t turn off being a parent just because they reach a certain milestone, but you can change how you relate and behave.

So take your commitments seriously. Especially to other people. You are probably unaware of how much others value it.

What is ok and what is not?

100 Quotes on Life that'll Bring Alive a New You & Change You Forever!!

One of the things I have found in the last few weeks and months is that my perceptions of what is ok and what isn’t are changing. Some of this is through psychotherapy, some of this is through experiences, some of this is through talking with friends.

I have seen things posted on line and shared in several places that are unhelpful and unhealthy. Images and quotes that have made me doubt myself, my opinions and my decisions. Things that have made me question those around me. There are 2 things I really need from those around me at the moment….consistency and loyalty.

When I say this, I don’t mean in a pompus, clique-y or sorority type way. But I mean in a way where I know who I can and can’t rely on. What is going to be stable in both mine and my families lives. What is going to be helping lay the foundations for who I am becoming.

12253391144_ba9a2935f6_z

I’ve also seen things about who to rely on. And that online support is unhealthy, is unreal and is living in a fantasy world. For me, in reality, some of my friends that I know mainly in an online or digital capacity are some of my greatest support. Some of them I have met once, some of them I have met several times, and some of them I have never met, but they are their to support me, to encourage me and to help me achieve the best in who I am. They counsel me and help me process, in the same way that friends I see face to face do. In fact, some of those who are digital friends are the people I see frequently face to face. But that doesn’t mean that those who I have never met are worth any less.

With my depression and anxiety, friendships are hard to maintain. I know that they take a huge level of understanding from my friends and my support network. People need to know that I need to know who I can trust and when and where I can rely on them. If people let me down, then I will walk away as the energy that relationship takes from me needs to be invested in my family and other relationships.

What’s worse though, is that I know I am not the only person experiencing this. For many of my friends with a baby under 1, friends have become a rarity. People aren’t being bothered to take the time to invest in them now their priorities have changed.

New mums need the support the most. Whether it be a new mum for the first or the fifth time. Every new small person into a household mix takes their mum away from the “normality” that existed pre baby. But that doesn’t stop the mum from caring. It is then that she needs it more, but has it the least. So be a friend. Don’t stop caring cos one day you’ll try to care and it will be too late.

Depression Quotes and Sayings About Depression _ HealthyPlace

 

Getting ready for the next stage

bf220d9dc23bb5c7701fd7942630e088

One of the things I am really struggling with at the moment is every time someone tells me that my little girl is growing up. I know that she will be my last baby, and so in someways I want to make all of this time last as long as possible.

In 2 days time she will be 7 months old. That is more than half of her first year gone, and I feel at times like I have missed so much of the first few months. I am constantly trying to capture in my mind and my heart each moment, as I know I can never have them again. While I am celebrating her moving on in her development, part of me keeps feeling ‘Not yet’! Part of me isn’t ready yet for her to start being mobile, becoming more independent, needing me less.

And I know that some of this is a long long way off.

My toddler still needs me daily. My teenager needs me – but not as much as it feels like I need him. And my daughter needs me. I know she does. But I also know that she doesn’t always miss me like I miss her. I know that none of my children do.

My husband and I joke about my behaviour when I am apart from my teenage son for any period of time. I feel like I have lost an arm or a leg. I find it really hard. I struggle with letting go, as I can still remember holding him in my arms nearly 18 years ago, and  realising that this small person was suddenly totally dependent on me.

I struggle with how willingly my toddler runs off to his childminder – and only because she is so amazing at what she does, and he absolutely adores going. But I struggle because it is a time in his week when I am not needed.

At the moment I am struggling with the idea of returning to work. I love my job. I have really enjoyed my Keeping In Touch days. I adored the day I had back in the office a couple of weeks ago. I love my colleagues. I love what we do. But I am struggling with the idea of not being there for my daughter all day every day. It’s irrational, I know. I know she will be having an amazing time with our wonderful friend and childminder. I know I can touch base whenever I need to. But I am struggling.

What I have realised is that I am human, I am normal. I am not superwoman. I am allowed to feel like this. Loving my children is the hardest but the easiest thing to do, and each stage require me to let go a little bit more.

hodding-carter-quote-parenting

A fine line….

Balancing-213x300

I’m discovering how there is a really fine line between me feeling up and me feeling down. I often don’t know when I am close to teetering over the line. I am starting to recognise the triggers though. As I posted a few days ago, I have had a really positive few days. But I also knew that this didn’t mean I was permanently back on the up.

This afternoon I have felt myself sliding back down. Parenting three children (and yes my teenager is still my child) is a juggling act. As I have said before, all 3 have different needs and demands on my time. This week I have been having to manage a toddler who has had an allergic reaction to another food. As a result, he has been crabby, clingy and just not himself. Juggling that with a 6 month old who is trying to reach further, move more, do more, but constantly toppling, and also needing greater input and awake for longer, has been exhausting. The break in the madness was then going out for half an hour to pick up the teenager! But all of this, combined with an early start, and a full on, but highly enjoyable day before, has dragged me back down.

I am still having to learn where to draw a line and give myself a break. When I topple over the line, I find myself getting into bad, negative cycles. I start to compare myself, my life, my children with those of others. I compare with friends, with relatives, with strangers who post in random places on social media. I get myself down because I feel I am failing my child(ren) because they are not achieving their maximum potential.

I struggle because my baby isn’t keen on eating, when my friend’s child who is younger will chomp through 3 meals. I struggle because my toddler isn’t as eloquent as other children his age. I struggle because I can’t do with my children everything I feel I should. I struggle because I don’t want to leave the safety of my house. I want to stay in my safety blanket. I know I need to find space to stop and take a break when this happens, but it is finding the safest way to do that.

I know I made a mistake when I got to a similar point when my toddler was younger. I cut myself off from people completely, and nearly lost completely some very valuable friendships. This time I am trying to get the balance right. To be able to take a step back without cutting everything off. I’m still not always getting it right, but I am trying, and I am learning.

I hate the struggles that PND gives me. I hate the impact it has on my life at the flick of a switch. But I am learning that I there is a trigger, and I am trying to stop the switch being flicked.

xMHQUOTE1-copy.jpg.pagespeed.ic.klBJgTWfqL

 

6 months in and I’m starting to feel a bit more normal!

Newcastle Family Life_ What it was like suffering from PND

This week saw the 6 month mark since I gave birth. In the last month we’ve started to have some big changes…..she’s moved out of our bedroom,she’s starting trying food, she’s sitting up unaided. But for me the biggest change has been one that I’ve felt in me. In the last couple of weeks it’s started to feel like the horrid fog that is brought down by the postnatal depression is lifting a bit.

I’ve actually started to feel real joy in things again, rather than the forced feelings that weren’t genuine but were what I knew I should be feeling. I’m actually finding that spending time with my children is becoming an enjoyment again and not a chore. That might sound awful, but that is the reality for so many parents. Enjoying time with my toddler, my teenager, my baby, is something that had become a distant memory, and is  now something that I am starting to enjoy again.

This doesn’t mean that everything has suddenly got easier. It really hasn’t. Going out can still be my biggest cause of anxiety, and the easiest thing to find an excuse for. Finding the energy to do much else is still a struggle. Feeling like all I can do is sleep some days is still very common. But it’s small steps.

Over the weekend I have deliberately used my energy to do some small “jobs” that needed completing at home. I have realised over the last couple of months, that there are certain areas in the house that it helps me if they are ordered and tidy. I hate not having the energy to keep on top of it all. Unfortunately, this can trigger my OCD and my anxieties. Knowing things aren’t away in their place, where I have created a process and a plan causes me more stress. However, rather than tackling this when it is small, I can let it become a bigger problem. For me, recently, my bedroom has been this area. The pile of clothes and bits at the end of the bed has got bigger and bigger, and the stress in my head about it has got bigger and bigger. So I have tackled it, but know that now I can relax more. But I also know I will now want to make sure everything is in the right drawer etc, and will struggle when things are out of place.

Frustratingly it really is a catch 22. And I know it’s something that people don’t understand. Obsessive Compulsive Disorder is that….it’s a disorder. There is no explaining why I need things to be in a certain place in a drawer, and why I find it so stressful when they aren’t. It isn’t logical. Boy do I wish it was! I hate it. I hate that I can’t escape it or explain it.

The other thing I am realising, and having to come to terms with, is that this is going to be a new “normal”. Normal won’t be going back to how I used to be, but it is about mean learning to live with who I am now, and that this version of me is likely to be around for a long time. Until I have accepted this version as the here and now, and stop trying to mask it, I can’t expect others to accept it. They will keep thinking the performance is the reality.

So I will keep going with this new normal.

The easiest way to follow your favorite blogs