Allergies take 3! (and more!!)

Check out KFA's _22 Things We With You Could Understand About Food Allergies__

People asked when I was pregnant, what was the chance of the baby having the same allergies as my toddler. It really was 50/50. 2 weeks in, and we already had the first bit of the answer….3 out of 3 children had CMPA. A dairy allergy. In a space of 6 hours I watched my contented baby turn into a miserable, writhing in pain little girl, producing nappies that were not “normal”.

I was so grateful that I had a supportive Health Visitor, who straight away put  my daughter on to the NHS allergy pathway, with a referral to the dietitian, and we made an instant appointment with the GP.

But one thing we didn’t know was how severe her allergy to cows milk protein was, or whether it would be her only allergy. What we did know was that this meant that weaning was going to have to be the allergy led method again. Following on from dietitian advice, we started with our son’s known “safe” foods, trying to build up a base of foods, before testing some of his allergens.

I’ll never forget the day I went for the first of his known allergens. I was nervous. Knowing that this could cause my daughter pain or worse, was not a great feeling. But I had to do it. We were lucky. The first one we tried was apple, and all was ok! Phew! And we tried that because it is added to so much that it was a bonus if she could have it. Maybe I then thought it wouldn’t be so bad or my mind just thought lets go for it, but I then tried another allergen. This time it was one where my son was allergic to  a whole food “family”. The first time seemed ok, so we went on for attempt 2. That night, we did not get much sleep. She was so unhappy. In pain, drawing her legs up, crying, unsettled. We thought it was the sweet potato, but to be sure, we had to try again a week or so later. And yes, it happened again. One little girl, very unhappy. And so her allergen list started.

What we have found is that when she has gut based reactions, they are generally more severe than her brother’s. For example, she can’t tolerate even medical grade coconut products, but her brother can. She can’t tolerate any fish we have tried, her brother can tolerate white fish but not oily fish. She can’t even cope with peppercorns or ground pepper from the nightshade family, he can cope with a little.

But we’ve also got a little girl that doesn’t like to have lumps in her food. After 3 months of introducing food, she will finally have a bit of texture, but this has been an additional challenge. The dietitian recommended focusing on textures over new foods, as this was more important, so the introduction of new foods has gone on hold. We’ve got many more things to try.

So it’s actually been trickier this time round. We don’t have all the answers for our daughter yet and we don’t know if it will be worse than our son or better. But we know it’s currently a very similar path. If we go away, even for 1 night, we take 2 bottles of antihistamines, 2 inhalers, snacks and milk for both children, probiotics to help their guts. The list goes on. Currently there is no epi pen in the kit, but that doesn’t mean their won’t ever be. I’m just grateful that neither has had a reaction that needs one.

So, life as an allergy mum continues. And the one thing I am grateful for is the fact that if nothing else I can be a support to others who are journey some of a similar path.

Check out KFA's _22 Things We With You Could Understand About Food Allergies__ (1)

Goodbye to Facebook

So this might seem like an extreme post, and it might seem odd that I am sharing this on Facebook, but I wanted to share my thoughts and how I have got to this place, and not just disappear.

Over the Christmas period I chose to remove myself from Facebook. It was starting to take up too much of my life, and I was getting to tied up in a virtual world and was starting to feel judged and assessed by that world. In this period I can honestly say I haven’t really missed it. What I have felt is a freedom from the perception of what the world thinks of who I should or shouldn’t be. Of what I should or shouldn’t share, and of what kind of person I want to be.

Don’t get me wrong, there are some groups I am part of that have been a great support to me, and I may choose to continue to interact with them at different points. But what  I have realised is that I don’t need to share parts of my life on Facebook for value and worth. I, like many, will only post the parts of life which I want the world to see. But that isn’t healthy or constructive. It has meant that I am not being true to myself.

The other thing I have noticed, is that many people think that what you post on social media is you life, and that by reading your posts, they don’t need to interact with you on a personal level. Friendships are becoming warped. People think they are your friend because of what they see online. I’ve learnt that my true friends are those who are around me at the times when life gets tough. That doesn’t mean they all live 5 minutes away….in fact some of our closest friends live many many miles away. But they are the ones who take time to get in touch, and check that all is ok.

Also when I was pregnant, we made a decision that  we did not want our baby growing up thinking that a presence all over social media was the norm, or what was expected of him. We wanted him to decide his own privacy boundaries and to choose what of his life he wants to share. We also have made a decision for him not to expect to watch TV or spend his life in front of screens. In fact, the only programmes he watches regularly (by this I mean a couple of times a week) are Fireman Sam and Thomas the Tank Engine. Watching him grow through his creative play and his imagination is so rewarding…..live TV at home!

Note: This isn’t us judging anyone else, it is just how we have chosen to raise our son.

So I have decided in light of all of this to take a permanent step away from Facebook. Yes I  will still use other social media channels at times. I will still have an account as I need it for work. I will still visit the site (yes the site, not the app) occasionally. But I won’t be on here day in day out. I won’t be aware of notifications, as my phone won’t beep or stick an icon in the corner.I will still blog from time to time, which will be shared. I can still be contacted on Messenger, and all manner of old fashioned means of communications! Just don’t expect me to hear your latest news on FB or expect to hear what I am up to, as it won’t be happening. Do keep in touch……I love receiving letters in the post!! (An emails work well too!)